A HISTORIC MOMENT FOR CHANGE.
A parliamentary debate on brain cancer has been secured for Monday 15 June 2026. After 109,063 signatures, the voice of patients, families and clinicians will be heard in Westminster Hall. We need your MP there.
CAMPAIGNS
cancer killer of children and adults under 40
#1
deaths in the UK each year
5,500
of cancer research funding allocated to brain cancer
2%
petition signatures demanding change
109,063
Brain cancer remains one of the most underfunded and underserved areas in oncology. Despite being the biggest cancer killer of children and adults under 40, it receives just 2% of total cancer research funding. Survival outcomes have not improved at the pace seen in other cancers, and patients are too often left with too few options and too little time.
Brain Cancer Justice (BCJ) is a community driven by lived experience. Their petition to Parliament has secured a formal debate - a rare and significant opportunity to hold the Government to account and demand real, measurable action.
Why this matters
Westminster Hall,
Houses of Parliament
Monday 15 June 2026 · 6:00 pm
"Invest in Brain Cancer and Give Rights: Turning TERMINAL into TREATABLE"
A named brain cancer lead with accountability, responsible for driving delivery across Government and the health system
Improved access to clinical trials and innovative treatments, including a meaningful Right to Try where no standard options remainTreatment explanations and statistics
An urgent NICE review of treatments shown to improve survival - including Optune - to remove barriers to access
Guaranteed access to Whole Genome Sequencing (WGS) for all brain cancer patients, with standardised post-surgical tumour tissue collection and storage
Ring-fenced, protected funding for brain cancer research - separate from wider cancer budgets
What the debate is calling for
Attend or follow the debate on 15 June
Westminster Hall, Houses of Parliament, 6:00 pm. Public attendance is subject to availability. You can also follow proceedings online via Parliament TV.
2
Contact your MP before 15 June
Use the template letter below to ask your MP to attend and speak at the debate. Add your own story if you feel able - personal experiences make a real difference.
1
Follow up after the debate
Write to your MP again after 15 June to ensure the commitments made in the debate are followed through. You can CC: info@braincancerjustice.org to keep BCJ informed.
3
Copy and personalise this letter. Adding a sentence about your own experience or connection to brain cancer can make it more powerful.
Subject: "Invest in Brain Cancer and Give Rights: Turning TERMINAL into TREATABLE" - Westminster Hall, 15 June 2026, 6.00 pm
Dear [INSERT NAME OF YOUR MP],
I am writing as your constituent to ask for your urgent support on brain cancer - a disease that continues to devastate families across the UK and has been overlooked for far too long.
[If you feel able, add a short personal line here.]
I support Brain Cancer Justice (BCJ), a community driven by lived experience. There were 109,063 people who signed the petition because they expect delivery, not further delay or unfulfilled promises.
Brain cancer is the biggest cancer killer of children and adults under 40, yet it receives only around 2% of total cancer research funding. Around 5,500 people die each year in the UK, and outcomes have not improved at the pace seen in other cancers. Patients are still being left with too few options and too little time. This must change.
A crucial debate will take place in Westminster Hall on Monday 15 June 2026 at 6.00 pm:
"Invest in Brain Cancer and Give Rights: Turning TERMINAL into TREATABLE"
I urge you, as my MP, to support the following actions:
• Ring-fenced, protected funding for brain cancer research, separate from wider cancer budgets
• An urgent NICE review of treatments shown to improve survival, such as Optune
• Guaranteed access to Whole Genome Sequencing (WGS) for all brain cancer patients
• Improved access to clinical trials and a meaningful Right to Try where no standard options remain
• A named brain cancer lead with accountability across Government and the health system
These actions are essential if Government is serious about transforming brain cancer outcomes from TERMINAL to TREATABLE.
I look forward to hearing from you and hope you will be able to confirm your attendance and contribution to this crucial debate.
Yours sincerely,
[Your Full Name]
[Your Postcode]
CC: info@braincancerjustice.org
Patients family
Access to a website like this would have been a breath of fresh air during the chaos and confusion that followed my husband’s diagnosis. Having clear, specialist-led information in one place would have helped us better understand what was happening, what options existed and how to navigate decisions with more confidence. At a time when everything felt overwhelming, clarity and compassion in how information was presented would have made a real difference. I’m really glad that this website now exists for others facing a similar situation.
Patients family
Tackling a GBM diagnosis is extraordinarily overwhelming, the stats bulldoze you & researching treatment options online is sole destroying. Having one consolidated place to connect with other patients, understand additional treatment options & potential trials & follow others journeys is incredibly comforting and very much needed. Thank you. It’s a tough journey and we only get through it by all sharing our discoveries to make each others experiences that little bit easier.
Thank you for putting the time aside for this website. Being a caregiver to a 10months in GBM patient I can honestly say that this website will benefit future patients enormously.
Patient
When everything changed, I didn’t want medical jargon or endless links. I just wanted clear, honest information I could actually understand.
Having it all in one place helped. Finding the information together was a huge relief. We could stop Googling and start getting a clearer picture of what was going on.
I could come back when I was ready. Some days I read a lot. Some days I couldn’t read anything at all. Knowing I could come back without pressure really helped.
Knowing more made things feel less chaotic. Understanding my options didn’t fix everything, but it helped things feel a little less out of control.
This was about more than treatment. This affected my whole life - not just my health. Seeing emotional and practical support included made me feel like that was understood. I didn’t feel like I was doing this alone. It felt like someone had already done the hard work of pulling this all together for me - and that meant a lot!
This website is an independent resource, developed by the Horizons in Neuro-Oncology (HINO) team in the UK. Initial development was supported by Dr Matt Williams and Lillie Pakzad-Shahabi, with grant funding from Novocure to support ongoing work.
HINO maintains editorial independence. While the team collaborates with a range of healthcare organisations and receives grant support from Novocure, all content is created and reviewed by the HINO team and reflects their combined clinical expertise, professional experience, and lived experience as patients and caregivers.
While content is based on UK clinical practice, much of the information may be relevant to international readers. It is provided for general guidance and should not replace medical advice from your own healthcare team.
Please use this information to support discussions with your local oncology team, or see our advice on obtaining a second opinion.
