what you will find on this page
When you or someone you love is living with a brain tumour, the medical side is only part of the journey. Standard care can feel very focused on the basics - appointments, treatments, scans - and while that’s essential, it doesn’t always leave space for questions about what else might help.
HINO support group
This group is designed to fill that gap. It’s a place for patients and caregivers to connect with others who are curious about additional treatment options, emerging research, and supportive therapies, in a safe and welcoming space.
Too often, this information is scattered across articles, forums and conversations, which can feel overwhelming and isolating. This group brings it together in one supportive space - making it easier to find answers, share experiences and feel less alone.
- Clear explanations of emerging treatments without jargon
- Real experiences from others in similar situations
- A place to ask questions that aren’t urgent enough for a clinic visit but still matter
- Emotional support from people who understand the mix of hope, fear and uncertainty
Caring for someone with a brain tumour often means searching for more than standard appointment information. You might want:
Why this group matters
- Regular online meet-ups via Zoom for patients and caregivers
- Guest speakers such as oncologists, researchers, physiotherapists, nutritionists, and others involved in supportive care
- Discussion threads to share experiences with emerging treatments, clinical trials, and lifestyle approaches
- Resources hub with links to trusted charities, trial finders, and practical support services
- Safe space policy so every member feels respected and heard
What the group offers
The group will be free to join and open to anyone affected by brain or spinal tumours. Members can attend live sessions, watch recordings, and access the resources hub. Registration will be via a simple sign-up form to keep the space safe and private.
how to join
- Patients diagnosed with brain or spinal tumours who want to explore their options
- Caregivers, partners, and family members seeking clear, balanced information and support
- Anyone curious about what might be available beyond their current care plan
Who it’s for
VIEW AND RSVP TO UPCOMING SUPPORT GROUPS
(the last week of each month)
Monthly sessions are held on Zoom
This website is an independent resource, developed by the Horizons in Neuro-Oncology (HINO) team in the UK. Initial development was supported by Dr Matt Williams and Lillie Pakzad-Shahabi, with grant funding from Novocure to support ongoing work.
HINO maintains editorial independence. While the team collaborates with a range of healthcare organisations and receives grant support from Novocure, all content is created and reviewed by the HINO team and reflects their combined clinical expertise, professional experience, and lived experience as patients and caregivers.
While content is based on UK clinical practice, much of the information may be relevant to international readers. It is provided for general guidance and should not replace medical advice from your own healthcare team.
Please use this information to support discussions with your local oncology team, or see our advice on obtaining a second opinion.
